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Mission Awareness – Write Your Elected Officials

RichHoward
Take Action – Write Your Elected Officials by Richard Howard
This is so inspirational. Yesterday I read how Huw Irranca-Davies, a member of the British Parliament addressed Parliament with a spondylitis manifesto.  He told his AS story and then listed what needed to be done for other people living with AS.  He also announced that he is joining the worldwide event to “Walk Your AS Off”. It’s brilliant.
I would love my congressman and senator to speak up about spondylitis and join us in walking.
I just wrote my congressman to follow Huw Irranca-DAvies example and to join us walking our AS off.
Will you please join me and write to your elected officials to join us and raise awareness for spondylitis. One way to contact your elected representatives is to go to http://www.usa.gov/Contact/Elected.shtml
Here is my sample letter:
Will you walk with us? 2.7 million Americans have a disease called spondylitis. It’s not a rare disease, but it’s often unknown. This lack of awareness causes years of pain associated with un-diagnosis and worse misdiagnosis. At 22, I had unnecessary surgery on my hip. That hip has never been the same. I was inspired to see Huw Irranca-Davies, a member of the British Parliament speak about AS in Parliament. http://www.bbc.co.uk/democracylive/house-of-commons-21580266. Huw Irranca-Davies will be joining us on the world-wide “Walk Your A.S. Off”.  Information on the walk and on spondylitis can be found at www.walkyourasoff.com. Will you please be the voice of 2.7 million Americans and speak about spondylitis in session? Thank you.
Kindest regards,
Richard Howard
Rich walks with The Home Team
 
* Take Action for Mission Awareness and write your congress person or state legislator! Once you do please comment here letting us know who you wrote.
 
 
 
 
 

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