We’ve asked the community of AS Bloggers to write & submit a blog post for our Blog Carnivals happening periodically over the span of our walk. This week we are sharing posts submitted about: Awareness, the good, the bad, and the ugly! Leading the way is Ricky of Endless Trax who wrote a very compelling […]
Author Archives: Jennifer Visscher
We are beyond excited to announce our partnership with the Arthritis National Research Foundation. ANRF is working with us on funding an Ankylosing Spondylitis specific research grant! This is a Mission Awareness equal to none and a concrete way to take action to raise money to support research for a cure. Once it is […]
Take Action – Write Your Elected Officials by Richard Howard This is so inspirational. Yesterday I read how Huw Irranca-Davies, a member of the British Parliament addressed Parliament with a spondylitis manifesto. He told his AS story and then listed what needed to be done for other people living with AS. He also announced that […]
Hey Everybody!! Meet Colleen Colleen is one of the captains on AS Standing Tall Together. She lives with her husband and 2 children in California, where she operates a daycare. As we gear up for Walk Your AS Off 2013 she is coming off the 3rd anniversary of her diagnosis of Seronegative AS. (HLA B27-) […]
Hi my name is Sara Tiara. Ok so tiara isn’t really my last name, it’s Shiebley but I have a love of Tiaras so Tuesdays are going to be Tiara’s Tuesday Talk and today I’m going to discuss walking aides. During this walk it is imperative that we don’t put our physical safety at risk. […]
Yesterday was a big day for Ankylosing Spondylitis Awareness. Huw Irranca-Davies, a member of the British Parliament spoke about A.S.! Please take a moment to listen to his eloquent description of his own story and the need for more research, better access to care, and the imperative to reduce the number of years it […]
How do you stay motivated? It can be difficult because life gets busy. So we are here to keep you thinking about moving & adding steps to your day! To receive our once a day inspiration & motivation simply text “ASwalk” – no spaces – to the number 55678! You will receive your […]
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Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been raising AS awareness online for almost 20 years. Five years ago, he started the April is Spondylitis Awareness Month campaign and last year […]
Hi my name is Sara Tiara. Ok so tiara isn’t really my last name, it’s Shiebley but I have a love of Tiaras so Tuesdays are going to be Tiara’s Tuesday Talk Coming on Tuesday I’m going to discuss walking aides. Make sure to sign up to receive an email when I post – there […]