Thank you for coming back. Your emails have been very nice to read, and I truly feel your pain. The main objective of my story is to help others understand, and for you to hear from someone who has been very recently diagnosed with A.S. This article is aimed at the guys/girls who are brave […]
HLA-B27 – These used to be just letters and numbers to me. But these numbers have changed my life in a blink of an eye, as they have yours, and YOU ARE NOT ALONE. And if this blood test is positive, we both have Ankylosing Spondylitis. It is a horrible autoimmune system disease that attacks […]
I was planning on writing about how people with chronically painful illnesses are dimensional and should not only be viewed through the lens of their disease…and it would have been a mighty post and it would have inspired many, but in fact, that’s not my mindset right now. Right now I am in grieving. I […]
I’m not sure if you noticed, but last week, no blog from me. I was in the hospital. Semi-not AS related, but come on, everything is AS-related in our bodies. I was MIA or as I like to say in-Kaiser-ated because my immune system allowed an insignificant insurgent bacteria to grow and duplicate and multiply […]
I started casually practicing yoga my freshman year of college. I took a Yoga class, and I was surprised to find how relaxed and energized I felt after each class. I noticed that my mobility was improving and my back did not hurt nearly as much after class as it did before. As my back and […]
In 1966, two years before giving birth, James and Bobby Purify (and R&B Duo) released the song I’m Your Puppet. The opening lyrics go like this, Pull the string and I’ll wink at you. I’m your puppet. I’ll do funny things if you want me to, I’m your puppet. Enduring a radical autoimmune disease and […]
As many of you know, dealing with A.S. can be quite a battle. A few nights ago, I was walking in my bedroom when I slipped and fell to the ground. Thankfully, I landed on the carpet, but it still was not a good feeling especially because I was in the midst of a bad […]
Teams are beginning to register for our 2015 spring event and the weather seems to be getting better for many. As we prepare for our fourth year we are looking for bloggers to post about our walk, awareness activities, team highlights, general information about Spondylitis, and possible gear reviews. If you are interested please email [email protected]. […]
Hello everyone – Jenna here! I am writing this week’s Monday Motivation (ok… on Tuesday) for Heather because she isn’t feeling so great unfortunately. Please send her some good vibes – & a comment below would be lovely. When I heard from her yesterday I told her I would write something so not to worry. […]
I recently opened the website for this very walk and saw “walking to raise awareness” because that is all that fit in the tiny window of my mini-computer. Of course the end says “of Ankylosing Spondylitis” which we are. We are also raising awareness in ourselves. In these 341 million steps we have walked I’m […]
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