We are off to an amazing start! I want to thank each and every one of you for your participation to date! We have many weeks ahead but I sure hope you can see it will be worth the effort and lots of fun along the way. We have many new things coming up […]
By believing passionately in something that still does not exist, we create it. The nonexistent is whatever we have not sufficiently desired. – Franz Kafka I’ve been thinking a lot about our walk & how we can share what we are doing with the world & in the process raise awareness of spondylitis. I need […]
Musical Motivation Monday – by Heather Stewart “They won’t be fools or be victims Or fall along the way. They fight for life, these large strong birds, They won’t let it pass them by. Examples in our life should be. To fly where Eagles fly.” -excerpt from “Where Eagles Fly” by Helen E. Payne Spencer, […]
We’re Kickin’ It For Kynna & Steppin’ For Susie! Both Kynna & Susie have juvenile Ankylosing Spondylitis and we are walking for them and for the hope for a cure for everyone with this family of diseases. Please share their coloring pages with your kids – they want so much to support us and this […]
It’s MONDAY!!! Day 4 of our journey to the moon. Every journey begins with that first step. We are like children learning to stand; we need something to hold on to, to brace us as we pull ourselves up and get our feet under us so that we can take that first step. This walk, […]
I first met Ivanhoe through AS Facebook friends a couple of years ago. His story & struggles with his fused joints are heart wrenching and inspiring at the same time. Ivanhoe has not only a fully fused back but fusing in one shoulder and both hips. His body has become a cage limiting movement in […]
Take Action – Write Your Elected Officials by Richard Howard This is so inspirational. Yesterday I read how Huw Irranca-Davies, a member of the British Parliament addressed Parliament with a spondylitis manifesto. He told his AS story and then listed what needed to be done for other people living with AS. He also announced that […]
Yesterday was a big day for Ankylosing Spondylitis Awareness. Huw Irranca-Davies, a member of the British Parliament spoke about A.S.! Please take a moment to listen to his eloquent description of his own story and the need for more research, better access to care, and the imperative to reduce the number of years it […]
Hello there! I’m Heather Stewart. I am from Central New York and one of the proud captains of Rockin’ Weebles: Weebles Kick A.S. I grew up around A.S. My maternal grandfather had it and I never knew him when he didn’t have it. I could never understand why he couldn’t turn his head. I watched […]
How do you stay motivated? It can be difficult because life gets busy. So we are here to keep you thinking about moving & adding steps to your day! To receive our once a day inspiration & motivation simply text “ASwalk” – no spaces – to the number 55678! You will receive your […]
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