Ankylosing Spondylitis

It's Time To Walk!

Photo by Hamed Saber TODAY IS THE DAY! IT’S TIME TO START STEPPIN’! It’s that time of year again…it is WALK YOUR AS OFF! W is for Waiting. It’s so hard to wait for the event to begin on April 1, 2016. A is for Awareness. That’s why we count our steps and promote this annual event—to create awareness. L is for Line-Up. Your line-up, your team, your motley crew—the people that are on your side. K is for Kicking AS, because that what we do—WE KICK AS. Y is for Yes. Yes, you can take one more step (and then… Read More »It's Time To Walk!

My Story – by Bret (Part 1)

HLA-B27 – These used to be just letters and numbers to me. But these numbers have changed my life in a blink of an eye, as they have yours, and YOU ARE NOT ALONE. And if this blood test is positive, we both have Ankylosing Spondylitis. It is a horrible autoimmune system disease that attacks our joints and tendons, and other areas of our bodies, including our organs. And to make it even more of a challenge, the story is different for all of us. Some have very few symptoms, and others like me are in constant pain 24/7, with… Read More »My Story – by Bret (Part 1)

Calling All Team Captains

Hi! My name is Bree Trejo, and I’m Team Captain of Perseverance Warriors. I’m also serving as the Lead Team Captain for Walk Your AS Off 2016. If you’re thinking of captaining a Walk Your AS Off team this year, or you’re looking for ways to bring your team together to Walk AS One, I’ve got some ideas for you! Being a team captain has its challenges, but what you get in return makes it worth it. One of the biggest challenges I had was getting my team members to send me their steps. I think every team captain struggles… Read More »Calling All Team Captains

Walk AS One World Cup: An Interview with the Winners – reFUSE to Lose

This year was the very first Walk AS One World Cup! There were two separate categories in this years cup, which were for the total number of team steps, and the total average steps per walker. I got in touch with Jessica Cuccio, the team captain of reFUSE to Lose, and winners of this years total average steps Cup, to talk about their experience in this years WYASO.   Congratulation on winning the Cup for the highest average steps per person.  Have you had a chance to celebrate a successful WYASO yet? If so, how did you celebrate? I am so… Read More »Walk AS One World Cup: An Interview with the Winners – reFUSE to Lose

And the 2015 Walk AS One World Cup Goes To…

What a year we’ve had!   Congratulations to our first ever winners of the Walk AS One World Cup! Going forward we will hone in on our categories for these recognition awards as we get better at bringing in data from our teams. For this year we have awarded two cups based on the following two categories: 1. Total Number of Steps – reported by one team during the Walk Your A.S. Off walking season of April and May of 2015. – This year that award goes to the Orange Apples based in the United Kingdom and captained by Gillian… Read More »And the 2015 Walk AS One World Cup Goes To…

WYASO Round-Up Finale 2015

Welcome to the final round-up of the WYASO main event. We do hope you had a wonderful time participating in this years walk, and we hope you achieved your own personal goals too. We’d like to thank everyone for their hard work and dedication to raising awareness for AS. Without the support of each and everyone of you there would be no WYASO. You make this the success it is, and we are truly grateful. Walk AS One at the Rose Parade, Oregon. Bree Trejo and members of her WYASO team Perseverance Warriors, walked under our new global charity name, Walk… Read More »WYASO Round-Up Finale 2015

WYASO Round-Up: Week 3

Welcome to the third WYASO Round-Up. This is your chance to catch up on all the amazing things that the WYASO community have been up to in the last week. If you didn’t catch our other round-ups, you can read week one and week two by clicking on the links. The LOVE Run in Taipei – The Walking Spondies Carrie of The Walking Spondies writes about raising awareness in Taipei, Taiwan. “On May 15, 2015, two members from The Walking Spondies participated in the LOVE Run in Taipei, Taiwan to help raise awareness for Ankylosing Spondylitis and associated diseases. Together, they logged over 30,000 steps… Read More »WYASO Round-Up: Week 3

WYASO Round-Up – Week 2

Welcome to the second WYASO Round-Up. This is your chance to catch up on all the amazing things that the WYASO community have been up to in the last week. So with out further ado, we’ll jump straight to it. World Autoimmune Arthritis Day 2015 WAAD2015 is a global online nonprofit car race around the world of social media and internet. The aim is to put the spotlight on educational resources, as well as catapult global awareness for all types of autoimmune arthritis. This year member of WYASO are competing under the team name Walk AS One. And we need… Read More »WYASO Round-Up – Week 2

Coping with Grief and AS

I was planning on writing about how people with chronically painful illnesses are dimensional and should not only be viewed through the lens of their disease…and it would have been a mighty post and it would have inspired many, but in fact, that’s not my mindset right now. Right now I am in grieving. I am grieving the person I used to be…the person that once was. As soon as I was diagnosed with Ankylosing Spondylitis, a new realm of support opened for me with my healthcare providing system of insurance-izzle HMO. I belong to a large HMO that really… Read More »Coping with Grief and AS

WYASO Round-Up – Week 1

Welcome to the first round-up of the WYASO main event. The round-up is our way of sharing what others in the WYASO community are sharing and talking about. If you would like your blog post / video / newspaper article to be featured on the next round-up, please can you send us the link via email or leave a comment below.   70 Facts About My Invisible Illness You Might Not Know Carrie from The Walking Spondies on the facts of her invisible illness. “Despite the fact that this blog and my activity on social media has brought me into the public… Read More »WYASO Round-Up – Week 1