Having FUN

Tiara's Tuesday Talk – Where We Go From Here

It was a dark and stormy night…. That’s how a good story starts right? No? Awe nuts. I’ve been thinking things over for a few days, well actually a week or so… Here we are at week 10. THIS is it. Reaching the moon… I wanted to make this a special post, to really put an EXCLAMATION on this journey we have been on together. As we approach the moon, there are a few things we need to clear up about it. First, it is not made of cheese.   Trust me on this one. I would have been the… Read More »Tiara's Tuesday Talk – Where We Go From Here

Musical Motivation Monday – Ain't No Stopping Us Now!

Musical Motivation Monday – by Heather Stewart We are poised to leave our footprints on the moon. We will reach our destination but will we have accomplished all that we set out to do? We wanted to take steps to reach the moon but to also get people moving and raise awareness for AS. I think we have accomplished that. I know I talked to people I probably wouldn’t have about it by simply looking for a good quality pedometer. Also, I know there are some people who noticed my barrage of status updates recruiting Rockin’ Weebles who stopped me on… Read More »Musical Motivation Monday – Ain't No Stopping Us Now!

Sunday On A Walk With Michael – Week 6

Today’s walk-ku by Michael Smith haiku #1: All of my efforts can be summed up by how I continue walking. haiku #2: As Spring emerges, crocuses and daffodils greet me while I stroll.     Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been raising AS awareness online for almost 20 years. Five years ago, he started the April is Spondylitis Awareness Month campaign and last year co-produced the Best Medicine Night of Comedy fundraiser to benefit the Spondylitis… Read More »Sunday On A Walk With Michael – Week 6

Musical Motivation Monday – Week Four

Yeah! It’s Monday and time for some more meditations on motivation. Every day on our road there is a group of ladies that walk past our house to the corner and back, being a country road that is really a distance, but they do it. That got me thinking about our walk and how we stay focused on moving when we’re alone. We have our team mates but even then they may not be in the same area. The Rockin’ Weebles, we’re world –wide and not everyone has someone in the same town let alone the same country. Jenna, our… Read More »Musical Motivation Monday – Week Four

Wednesday Walker Spotlight – Kelly

  Wednesday Walker Spotlight – Kelly Warner by Chris Scott Hello Walkers!! It’s time for another Wednesday Walker Spotlight. This week I would like you to meet Kelly Warner. Kelly was rocking this years walk by taking on the Million Step Challenge. But yesterday she had a little mishap on her bike. We are all hoping that she makes a speedy recovery and is soon back in step and not hurting. Kelly is 42 and lives in Washington state. She received her diagnosis of AS and related conditions at the age of 28. Kelly struggled with AS for many years before… Read More »Wednesday Walker Spotlight – Kelly

Musical Motivation Monday – Week Two

Musical Motivation Monday – by Heather Stewart “They won’t be fools or be victims Or fall along the way. They fight for life, these large strong birds, They won’t let it pass them by. Examples in our life should be. To fly where Eagles fly.” -excerpt from “Where Eagles Fly” by Helen E. Payne Spencer, Cherokee     Here we are, beginning another week of our journey. I have heard walkers say, “I’m not walking much” or “my numbers aren’t good”. Even I fell into this trap of self doubt when confronted by the millions of steps that Team Endurance… Read More »Musical Motivation Monday – Week Two

Sundays On A Walk With Michael – Week Two

Today’s walk-ku by Michael Smith double haiku: My walk tired me, I rested under a tree, my thoughts wandering. But my wandering thoughts did not rest. In fact, they went and ran ahead.       Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been raising AS awareness online for almost 20 years. Five years ago, he started the April is Spondylitis Awareness Month campaign and last year co-produced the Best Medicine Night of Comedy fundraiser to benefit… Read More »Sundays On A Walk With Michael – Week Two

Color Kynna & Susie's Sneakers

We’re Kickin’ It For Kynna & Steppin’ For Susie! Both Kynna & Susie have juvenile Ankylosing Spondylitis and we are walking for them and for the hope for a cure for everyone with this family of diseases. Please share their coloring pages with your kids – they want so much to support us and this supports not only Kynna & Susie but also their Mom or Dad, brother or sister, or friend. Please share their creations on our Facebook page and we’ll also put them here on our website in a gallery page.   Download Kynna’s Page      … Read More »Color Kynna & Susie's Sneakers

A Walk in Malita, Davao Del Sur, Philippines With Ivanhoe Ardiente

I first met Ivanhoe through AS Facebook friends a couple of years ago. His story & struggles with his fused joints are heart wrenching and inspiring at the same time. Ivanhoe has not only a fully fused back but fusing in one shoulder and both hips. His body has become a cage limiting movement in a way so many cannot even begin to imagine. And yet, his spirit soars – uncaged – it takes flight through his kind acts and most especially through his talent with a paint brush. Ivan asked me if he could walk for Walk Your A.S.… Read More »A Walk in Malita, Davao Del Sur, Philippines With Ivanhoe Ardiente