Tag Archives: Inspiration

Tiara's Tuesday Talk – Stretching

Tiara’s Tuesday Talk – by Sara Sheibley So here we are at Tuesday again and time for my weekly talk. After much deliberation, and a helping brain from my daughter Ashleigh, we are going to discuss exercises you can do to help stretch out that back which may get achy from walking. For people with Ankylosing […]

Anything For A Good Cause – Well, Almost Anything!

Hi! I’m Abbe and I live in a VERY small town in Southeastern Iowa. I grew up here and I pretty much love it. It’s one of those nice little places where you find out from your neighbors and friends what you’ve been up to. 😉 Typically around here, and in my family, it’s “stay […]

Step Report – First 10 Days!

  We are off to an amazing start! I want to thank each and every one of you for your participation to date! We have many weeks ahead but I sure hope you can see it will be worth the effort and lots of fun along the way. We have many new things coming up […]

I Believe…

By believing passionately in something that still does not exist, we create it. The nonexistent is whatever we have not sufficiently desired. – Franz Kafka I’ve been thinking a lot about our walk & how we can share what we are doing with the world & in the process raise awareness of spondylitis. I need […]

Musical Motivation Monday – Week Two

Musical Motivation Monday – by Heather Stewart “They won’t be fools or be victims Or fall along the way. They fight for life, these large strong birds, They won’t let it pass them by. Examples in our life should be. To fly where Eagles fly.” -excerpt from “Where Eagles Fly” by Helen E. Payne Spencer, […]

Sundays On A Walk With Michael – Week Two

Today’s walk-ku by Michael Smith double haiku: My walk tired me, I rested under a tree, my thoughts wandering. But my wandering thoughts did not rest. In fact, they went and ran ahead.       Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever […]

Color Kynna & Susie's Sneakers

We’re Kickin’ It For Kynna & Steppin’ For Susie! Both Kynna & Susie have juvenile Ankylosing Spondylitis and we are walking for them and for the hope for a cure for everyone with this family of diseases. Please share their coloring pages with your kids – they want so much to support us and this […]

A Walk in Malita, Davao Del Sur, Philippines With Ivanhoe Ardiente

I first met Ivanhoe through AS Facebook friends a couple of years ago. His story & struggles with his fused joints are heart wrenching and inspiring at the same time. Ivanhoe has not only a fully fused back but fusing in one shoulder and both hips. His body has become a cage limiting movement in […]

Huw Irranca-Davies MP Participates In Walk Your A.S. Off

  Yesterday was a big day for Ankylosing Spondylitis Awareness.  Huw Irranca-Davies, a member of the British Parliament spoke about A.S.! Please take a moment to listen to his eloquent description of his own story and the need for more research, better access to care, and the imperative to reduce the number of years it […]

Heather Stewart's Musical Motivation Monday

Hello there! I’m Heather Stewart. I am from Central New York and one of the proud captains of Rockin’ Weebles: Weebles Kick A.S. I grew up around A.S. My maternal grandfather had it and I never knew him when he didn’t have it. I could never understand why he couldn’t turn his head. I watched […]