AS is a thief, a trickster and a really crappie life-partner. AS has no moral compass and absolutely no compassion. Its lack of empathy is only matched with its intense perseverance. It takes hold and never lets go…even if you have episodes of remission, this disease is lying in wait. Although it is true that chronic illnesses do not affect all patients in the same way, Ankylosing Spondylitis is known to cause inflammation, pain and fatigue. AS disrupts our daily activities, our plans and our ability to maintain relationships and often work. Chronic illness can bring depression, anxiety and a… Read More »You Are Reading This Because You Have Ankylosing Spondylitis
Guest Post by Karen Fitch, Team Captain of Fitch Feet What’s your new normal? Do you have one of those quadruple pill sorters like I do? Maybe you have your infusion appointments logged into you smartphone’s calendar? Possibly you are spending the next few hours wrapped up in bed with a heating pad? Perhaps you are eating a bowl of chocolate peanut butter ice cream because it’s the only 19 minutes of joy in your life today? Feasibly, you’re playing gin rummy with your kid because it is all you can manage to do as playing catch in the backyard… Read More »What's Your New Normal?
Photo by Hamed Saber TODAY IS THE DAY! IT’S TIME TO START STEPPIN’! It’s that time of year again…it is WALK YOUR AS OFF! W is for Waiting. It’s so hard to wait for the event to begin on April 1, 2016. A is for Awareness. That’s why we count our steps and promote this annual event—to create awareness. L is for Line-Up. Your line-up, your team, your motley crew—the people that are on your side. K is for Kicking AS, because that what we do—WE KICK AS. Y is for Yes. Yes, you can take one more step (and then… Read More »It's Time To Walk!
Karen Swank-Fitch, Team Captain Team Fitch Feet, has some very wise and inspirational words for all of us. The Walk Your AS Off countdown has begun. Get ready to walk on April 1st, and please stop by and leave Karen a comment. There is this certain song that has stuck with me since I was, say 5 years old or so. I have used this song as one of my “Soundtrack for Life” tunes that I used as motivation for my entire existence…be it to actually get up and move or to motivate myself internally. The ditty is from a… Read More »Just Put One Foot In Front Of The Other
May 4, 2015 I birthed a Star Wars Geek. He is almost 9 years old and Stars Wars is his SPARK. He is a sponge when it comes to anything Star Wars, so that means that his mama (me) has by default come to know more about Star Wars that she ever though possible. A bit of background…Star Wars came out long before the 24-hour news cycle, before TV shows like Entertainment Tonight or entire cable channels devoted to “entertainment.” So when Star Wars premiered in the spring of 1977, it was advertised mostly by word of mouth. People of… Read More »May The Fourth Be With You…