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Mission Awareness

Tiara's Tuesday Talk – There Is More Going On Here

Tiara’s Tuesday Talk – by Sara Sheibley Doctor’s bills? Yes we got ‘em. (To the tune of $695 and that’s only the bills I have.) Copays? They kill us. (I can’t even see some doctors because I don’t have the money for it.) Prescriptions? Cost us a small fortune. (Thank my lucky stars for insurance, I feel for those who don’t have it.) We jump through hoops for approvals for medicines, finding the ones that work best, affording appointments, affording physical therapy… The list goes on and on. What can we do? Not much because we need these things to… Read More »Tiara's Tuesday Talk – There Is More Going On Here

Finding Steps In All Kinds Of Places!

by Sabrina Diane Throughout this walk I’ve pushed myself out of my comfort zone to spread awareness and gather steps on a whole new level. AKA Harassing friends and family and now even strangers to join in and help us. The funny thing is with as awkward as I felt about asking these people they didn’t feel uncomfortable about it at all. They were open to listening and helping. Many of my friends and family were thrilled to have a way they could show support for me and my struggles with Ankylosing Spondylitis. Strangers felt inspired by our efforts and… Read More »Finding Steps In All Kinds Of Places!

Tiara's Tuesday Talk – Attacking The "Why Me's"

Tiara’s Tuesday Talk – by Sara Sheibley   Why didn’t anyone tell us this crud? I’ve been sick for what? 5 years now? Okay, okay… 26 but who’s counting? (Me, that’s who.) At what point would it have been important to explain that the “heat” radiating off my body is inflammation? I think doctors forget we can’t read minds. However, since I can’t take nsaids, it’s a terrible situation and it’s one that more and more of us are going through. Drug intolerance, ulcers, allergies… these are just a few of the reasons why most of us have lost our 1st… Read More »Tiara's Tuesday Talk – Attacking The "Why Me's"

Tiara's Tuesday Talk – Our Daily Struggles With Exercise & Having A.S.

Tiara’s Tuesday Talk – by Sara Sheibley   This week I’m going to discuss exercise in a different manner. For most patients with Ankylosing Spondylitis exercising increaseS our mobility, flexibility and decreases pain and depressions. Many studies show this to be true however, the question is, what if we over do it? What if you set a goal but fail to meet it? Usually the side effect of this is feelings of inadequacy and depression which then increases our pain. Also, you can put yourself into a cycle of exercise, required rest, depression and then a lack of interest to restart… Read More »Tiara's Tuesday Talk – Our Daily Struggles With Exercise & Having A.S.

Grab Your Friends & Walk For A.S. Awareness Month!

Jennifer, the team captain of Going The Distance, contacted me yesterday to share with me some ideas she and her fellow team mates had about getting together to do some team walks. I loved her enthusiasm and excitement so I asked her to write a few paragraphs about her ideas and how they came about. Here is what Jennifer wrote:   “Easter Sunday I gathered with my family who are also part of my “Walk Your A.S. Off” Team.  While discussing the walk, a very innocent question was asked… “When can we do a GROUP Walk?” Seemed easy enough, but… Read More »Grab Your Friends & Walk For A.S. Awareness Month!

Anything For A Good Cause – Well, Almost Anything!

Hi! I’m Abbe and I live in a VERY small town in Southeastern Iowa. I grew up here and I pretty much love it. It’s one of those nice little places where you find out from your neighbors and friends what you’ve been up to. 😉 Typically around here, and in my family, it’s “stay under the radar” and “don’t rock the boat” so I was raised to be quite reserved. If I didn’t know you, I didn’t talk to you unless I absolutely had to. You could say I was almost painfully shy. I also was not into sports… Read More »Anything For A Good Cause – Well, Almost Anything!

Wednesday Walker Spotlight – Casey

Wednesday Walker Spotlight – Casey Sullivan by Chris Scott & Casey Sullivan   Hey Walkers!! First off lets give everybody a gentle pat on our ol crooked backs for some A.S. Kickin’ step numbers this week!! GREAT JOB!! This week I’d like you all to meet Casey Sullivan, Team Capt. of Team Kicking A.S. and Taking Names. Casey is a Paramedic from New York and the team is made up of fellow First Responders, Firefighters, Nurses, Family, Friends and even a West Point Cadet.. Casey received her diagnosis at the age of 21, but her Dr. speculates that she has… Read More »Wednesday Walker Spotlight – Casey

I Believe…

By believing passionately in something that still does not exist, we create it. The nonexistent is whatever we have not sufficiently desired. – Franz Kafka I’ve been thinking a lot about our walk & how we can share what we are doing with the world & in the process raise awareness of spondylitis. I need to share with you all what I believe so hopefully you can understand better why everyone participating is doing something really really important. AND by understanding a little bit more about why our walk was created, we can see we have these beliefs in common… Read More »I Believe…

A Walk in Malita, Davao Del Sur, Philippines With Ivanhoe Ardiente

I first met Ivanhoe through AS Facebook friends a couple of years ago. His story & struggles with his fused joints are heart wrenching and inspiring at the same time. Ivanhoe has not only a fully fused back but fusing in one shoulder and both hips. His body has become a cage limiting movement in a way so many cannot even begin to imagine. And yet, his spirit soars – uncaged – it takes flight through his kind acts and most especially through his talent with a paint brush. Ivan asked me if he could walk for Walk Your A.S.… Read More »A Walk in Malita, Davao Del Sur, Philippines With Ivanhoe Ardiente

AS Bloggers On Awareness – Blog Carnival One

We’ve asked the community of AS Bloggers to write & submit a blog post for our Blog Carnivals happening periodically over the span of our walk. This week we are sharing posts submitted about: Awareness, the good, the bad, and the ugly! Leading the way is Ricky of Endless Trax who wrote a very compelling post last year about what awareness means to him. I asked him to include the link to that post along with the post he wrote this year specifically for this carnival. Ricky asks, “Is awareness just for people who have never heard of AS? Or… Read More »AS Bloggers On Awareness – Blog Carnival One