Sabrina’s Daily Dose: Exercise I hear many Spondylitis patients say all the things they can’t do regarding exercise. Now I’m not going to dispute that there are days exercise is physically not possible but I will dispute that we can’t do it at all. I know fully fused Spondys that Move Their AS still. They may not be doing jumping jacks or running a marathon but they are stretching their stiff bodies and doing whatever they can to keep mobility as long as they can. I am not able to do exercise like others or as long as others but… Read More »Sabrina's Daily Dose – Exercise
Wednesday Walker Spotlight – Kinsella by Chris Scott Hello Walkers!! We are down to the wire, and are just about ready to touch down on the moon!! We need everybody to really kick in those steps so that we can make it to our goal. This week’s Spotlight Walker comes to us from The Rockin’ Weebles. I’d like for everybody to meet Kinsella. Kinsella is married and lives in Japan, where she is and English teacher at a Junior College. Here is her story… “Hello, my name is Kinsella. On my daily walks I usually take it slow so I… Read More »Wednesday Walker Spotlight – Kinsella
Musical Motivation Monday – by Heather Stewart The moon is in sight! Don’t stop now! The urge is to slow down, back off and be carried on to the moon by the wave of other walkers. Don’t give in! The journey may have been long and arduous but keep on walking. We can do it! We can reach the moon. We have made it this far, step by step. Helping each other along the way, whether it be by cheering for the 42 step teams or individuals, pushing to add more steps to your totals, or stepping for those who… Read More »Musical Motivation Monday – We Better Keep On Walking!
Wednesday Walker Spotlight – Sara by Chris Scott & Sara Sheibley Hello Walkers!! Week 7 is in the bag and what a week it was! I want to welcome all of the new folks that have climbed on board to push our cause and to help us meet our goal of walking to the Moon… This weeks Walker Spotlight is going to shine on our very own Sara Sheibley. You all might recognize her from her “Tiara Tuesday Talk” segments on WalkYourASOff.com . She is a wife and mother of 4 and has dealt with chronic illness most of… Read More »Wednesday Walker Spotlight – Sara Sheibley a.k.a. Our Sara Tiara!
Tiara’s Tuesday Talk – by Sara Sheibley Doctor’s bills? Yes we got ‘em. (To the tune of $695 and that’s only the bills I have.) Copays? They kill us. (I can’t even see some doctors because I don’t have the money for it.) Prescriptions? Cost us a small fortune. (Thank my lucky stars for insurance, I feel for those who don’t have it.) We jump through hoops for approvals for medicines, finding the ones that work best, affording appointments, affording physical therapy… The list goes on and on. What can we do? Not much because we need these things to… Read More »Tiara's Tuesday Talk – There Is More Going On Here
Musical Motivation Monday – by Heather Stewart The last few weeks have been a bit sluggish as far as our steps. I don’t know how many times I have heard “sorry, not many steps this week…” I am told that weeks six and seven are the hardest to stay motivated. I admit that even I had a hard time. Who wants to go out and rock those steps and try to do more than what can be done inside? It is spring and the weather is supposed to be breaking but snow flurries still fall and frost still coats the… Read More »Musical Motivation Monday – Here Comes The Sun!
Tiara’s Tuesday Talk – by Sara Sheibley Why didn’t anyone tell us this crud? I’ve been sick for what? 5 years now? Okay, okay… 26 but who’s counting? (Me, that’s who.) At what point would it have been important to explain that the “heat” radiating off my body is inflammation? I think doctors forget we can’t read minds. However, since I can’t take nsaids, it’s a terrible situation and it’s one that more and more of us are going through. Drug intolerance, ulcers, allergies… these are just a few of the reasons why most of us have lost our 1st… Read More »Tiara's Tuesday Talk – Attacking The "Why Me's"
Musical Motivation Monday – by Heather Stewart Here we are again. I am sorry I wasn’t here last week. I have been in pain that has left me thinking about trying to stay motivated through the pain and how to keep mobile. I had intended to write about just that last week, staying motivated through the pain, but even I am having difficulty with that. I even asked some friends how they do it and the answers they gave me, at the time, didn’t seem to help. This week I went to physical therapy and we started talking about… Read More »Musical Motivation Monday – April 8th
Tiara’s Tuesday Talk – by Sara Sheibley This week I’m going to discuss exercise in a different manner. For most patients with Ankylosing Spondylitis exercising increaseS our mobility, flexibility and decreases pain and depressions. Many studies show this to be true however, the question is, what if we over do it? What if you set a goal but fail to meet it? Usually the side effect of this is feelings of inadequacy and depression which then increases our pain. Also, you can put yourself into a cycle of exercise, required rest, depression and then a lack of interest to restart… Read More »Tiara's Tuesday Talk – Our Daily Struggles With Exercise & Having A.S.
Wednesday Walker Spotlight – Gregg by Chris Scott & Tracy Lemieux Hello Walkers!! We’ve had another great week of walking and are well on our way to reaching the Moon!! This week’s Spotlight is a little different. This is Gregg’s Story as told by his mom, Tracy Lemieux. Tracy formed her team, “Team Gregg’s Legs” to support her son as he battles AS and its related problems, and to try to raise awareness in their area, Langley, BC, Canada. Tracy shares the following with us. “My 31 yr old son Gregg was diagnosed about 3 yrs ago, actually quite by accident.… Read More »Wednesday Walker Spotlight – Gregg of Team Gregg's Legs