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Year Two – 2013

Help Us Fund A Research Grant For AS With Arthritis National Research Foundation!

We are beyond excited to announce our partnership with the Arthritis National Research Foundation.    ANRF is working with us on funding an Ankylosing Spondylitis specific research grant! This is a Mission Awareness equal to none and a concrete way to take action to raise money to support research for a cure. Once it is funded, we’ll know that WE did it! Patients powering the future – one step and one dollar at a time. For more information please check out the Walk Your A.S. Off funding page and watch the dollar marker tick up as we work to get… Read More »Help Us Fund A Research Grant For AS With Arthritis National Research Foundation!

Mission Awareness – Write Your Elected Officials

Take Action – Write Your Elected Officials by Richard Howard This is so inspirational. Yesterday I read how Huw Irranca-Davies, a member of the British Parliament addressed Parliament with a spondylitis manifesto.  He told his AS story and then listed what needed to be done for other people living with AS.  He also announced that he is joining the worldwide event to “Walk Your AS Off”. It’s brilliant. I would love my congressman and senator to speak up about spondylitis and join us in walking. I just wrote my congressman to follow Huw Irranca-DAvies example and to join us walking… Read More »Mission Awareness – Write Your Elected Officials

Tiara’s Tuesday Talk – Supporting The Structures Of Our Bodies

Hi my name is Sara Tiara. Ok so tiara isn’t really my last name, it’s Shiebley but I have a love of Tiaras so Tuesdays are going to be Tiara’s Tuesday Talk and today I’m going to discuss walking aides. During this walk it is imperative that we don’t put our physical safety at risk. From our feet to our knees to our hips to our back, we sometimes need to use devices that help us achieve our goal.  These devices today are for support. Supporting the structures of our body is critical to getting in some successful walks and… Read More »Tiara’s Tuesday Talk – Supporting The Structures Of Our Bodies

Huw Irranca-Davies MP Participates In Walk Your A.S. Off

  Yesterday was a big day for Ankylosing Spondylitis Awareness.  Huw Irranca-Davies, a member of the British Parliament spoke about A.S.! Please take a moment to listen to his eloquent description of his own story and the need for more research, better access to care, and the imperative to reduce the number of years it takes so many to receive a diagnosis. Mr. Irranca-Davies also mentions our walk and asks others to participate! He will be joining us and walking to raise awareness. I’d say he’s done a great job of that before taking his first officially recorded step. Link… Read More »Huw Irranca-Davies MP Participates In Walk Your A.S. Off

Heather Stewart's Musical Motivation Monday

Hello there! I’m Heather Stewart. I am from Central New York and one of the proud captains of Rockin’ Weebles: Weebles Kick A.S. I grew up around A.S. My maternal grandfather had it and I never knew him when he didn’t have it. I could never understand why he couldn’t turn his head. I watched as his frame went from 6’3” to 5’6” due to the fused curvature of his spine. I also watched him continue to laugh, fish, camp, drive, and have a great time with his children and grandchildren. I grew up very active. I was a state… Read More »Heather Stewart's Musical Motivation Monday

Sundays on a Walk With Michael – A Weekly Walk-ku by Michael Smith

Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been raising AS awareness online for almost 20 years. Five years ago, he started the April is Spondylitis Awareness Month campaign and last year co-produced the Best Medicine Night of Comedy fundraiser to benefit the Spondylitis Association of America. His current AS awareness project can be seen at www.HowManySpondys.com Michael is also a playwright and poet. His popular weekly haiku blog is www.TheHaikulodeon.com In addition, his Spondyville weekly chat… Read More »Sundays on a Walk With Michael – A Weekly Walk-ku by Michael Smith

Helgi Olafson's Fitness Fridays & Twitter Chats

Hello and welcome to Fitness Fridays!!. My name is Helgi Spencer Olafson and I am an amateur endurance athlete, health activist for A.S., highly skilled executive chef, and a “Jack of all trades.” I love mother nature and everything she has to offer. I am excited to be able to train to become a professional triathlete on the beautiful Big Island of Hawaii. Most of all, I am excited to be able to share my experience with this paradise with everyone in this Challenge. I ask only one thing from my audience: If you become inspired to make positive healthy changes to… Read More »Helgi Olafson's Fitness Fridays & Twitter Chats

AS Bloggers Carnivals During Walk Your A.S. Off!

A Blog Carnival is a blog article that contains links to other articles covering a specific topic. We wish to share the many amazing ASer blogs here during Walk Your A.S. Off & we’ll have 4 carnivals & topics to share your blogs & sites with our worldwide audience. Feel free to submit a new blog post or a post you’ve done on this subject before. Our primary walk goal is to raise awareness and your words & efforts are so important to doing this because you share what a life with AS is like. Also – we have three dates we are… Read More »AS Bloggers Carnivals During Walk Your A.S. Off!

Chris Scott's Walk Your A.S. Off Wednesday Walker Spotlight

Wednesday Walker Spotlight: Chris Scott by Chris Scott   Hi, I’m Chris Scott. I am from McConnelsville, Ohio, where I live with my wife Carol and our Miniature Schnauzer, Kadie. I was diagnosed with Psoriatic Spondylitis in 1999 and we’ve been waging a war on AS since. Like most of us, when I heard the words along with “No Cure” I thought, “well this is it”. But never being a person to take anything at face value, I went to work to find out everything that I could about this stuff and I brought my Rheumy along for the ride. I am… Read More »Chris Scott's Walk Your A.S. Off Wednesday Walker Spotlight