We’re Kickin’ It For Kynna & Steppin’ For Susie! Both Kynna & Susie have juvenile Ankylosing Spondylitis and we are walking for them and for the hope for a cure for everyone with this family of diseases. Please share their coloring pages with your kids – they want so much to support us and this […]
Wednesday Walker Spotlight – Joe Tidwell by Kim Anderson Joe Tidwell started feeling severe back pain when he was 12 or 13 years old. The pain was so intense that he would often stay home from school and lay in bed. The doctors that he sought help from at that time did not think that […]
That’s right it’s Tuesday again and time for me to throw some exciting information at you about Assistive Devices for Walking. Recently I had to battle some demons of my own in this department and have decided, a cane is better than a fall. So, to educate you on this week’s subject matter I went […]
It’s MONDAY!!! Day 4 of our journey to the moon. Every journey begins with that first step. We are like children learning to stand; we need something to hold on to, to brace us as we pull ourselves up and get our feet under us so that we can take that first step. This walk, […]
Today’s walk-ku by Michael Smith My feet meet the road. The road is cordial … at first. Then things get bumpy. Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been […]
I first met Ivanhoe through AS Facebook friends a couple of years ago. His story & struggles with his fused joints are heart wrenching and inspiring at the same time. Ivanhoe has not only a fully fused back but fusing in one shoulder and both hips. His body has become a cage limiting movement in […]
We are beyond excited to announce our partnership with the Arthritis National Research Foundation. ANRF is working with us on funding an Ankylosing Spondylitis specific research grant! This is a Mission Awareness equal to none and a concrete way to take action to raise money to support research for a cure. Once it is […]
Take Action – Write Your Elected Officials by Richard Howard This is so inspirational. Yesterday I read how Huw Irranca-Davies, a member of the British Parliament addressed Parliament with a spondylitis manifesto. He told his AS story and then listed what needed to be done for other people living with AS. He also announced that […]
Hey Everybody!! Meet Colleen Colleen is one of the captains on AS Standing Tall Together. She lives with her husband and 2 children in California, where she operates a daycare. As we gear up for Walk Your AS Off 2013 she is coming off the 3rd anniversary of her diagnosis of Seronegative AS. (HLA B27-) […]
Hi my name is Sara Tiara. Ok so tiara isn’t really my last name, it’s Shiebley but I have a love of Tiaras so Tuesdays are going to be Tiara’s Tuesday Talk and today I’m going to discuss walking aides. During this walk it is imperative that we don’t put our physical safety at risk. […]
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